Patient and Public Involvement and Engagement
A key feature of this project is to consider the voices and experiences of people with multiple conditions and those who work closely with them.
It does so through patient and public involvement and engagement (PPIE) throughout the project. PPIE entails research being carried out ‘with’ or ‘by’ members of the public, rather than ‘to’, ‘about’ or ‘for’ them[1].
It encourages researchers to listen and interact with the members of the public. This approach to research is not only inclusive, but it is likely to result in a better understanding of ethnic inequalities in health care and care quality in people with multiple conditions, which is essential for informing policy and practice interventions.
In particular, PPIE would contribute to this project by
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informing our ongoing literature reviews by highlight important areas to focus
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informing the data analysis plan by identifying outcomes of interest that we may not have considered
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shaping our interpretations
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informing a logic model, i.e. a graphic representation of the different pathways we think lead to the ethnic inequalities in healthcare use and quality care in people with multiple conditions